LHS Collaboratory: ‘A Double-Edged Sword: Genetic Researcher Perspectives on Data Sharing’

FOUND IN: Events, Research Event


Thursday, December 1, 2022


12:00pm - 1:30pm


Great Lakes Room, Palmer Commons


LHS Collaboratory Seminar Series December Session- “A Double-Edged Sword”: Genetic Researcher Perspectives on Data Sharing

In contrast to the laborious and expensive process of generating genetic datasets de novo, academic genetic researchers are increasingly using large and inexpensive “secondary” research datasets held by government, consortia, and industry for their work. Choosing between different kinds of data providers is about more than just convenience, however, it can also have important implications for the kind of science advanced and to which communities it will generalize. This talk will explore the factors driving researchers to select certain datasets for their work as well as their experiences sharing to, as well as using, shared data resources. As researchers wait for the new National Institutes of Health’s “Policy for Data Management and Sharing” to go into effect in January 2023, this talk will explore who ultimately carries the burden of increasing data sharing requirements 


Kayte Spector-Bagdady, J.D., MBioethics
Interim co-director, Center for Bioethics & Social Sciences in Medicine Assistant Professor, Obstetrics & Gynecology, U-M Medical School

Registration link: https://www.eventbrite.com/e/lhs-collaboratory-december-in-person-session-tickets-429391490507