Nancy Kass, ScD, presents Ethics for a Learning Health Care System

FOUND IN: Events, Research Event


Tuesday, February 12, 2019


12:00pm - 1:30pm


Palmer Commons, 4th Floor


There is increased interest among health care institutions to transitioning to become learning health systems. In this process, however, there are increased practical and moral challenges from using the traditional definitions of “research” vs “practice” to determine which activities within such systems require IRB review and other ethics oversight, and which do not. As health systems more deliberately integrate care delivery with ongoing data collection, a set of ethics commitments for this integrated approach must be articulated. This presentation will provide an example of an ethics framework for learning health care and underscore how also being guided by commitments to transparency, engagement, and accountability around the ongoing learning are also essential, ethically.

Nancy Kass, ScD, is Vice Provost for Graduate and Professional Education at Johns Hopkins University, and a Phoebe R. Berman Professor of Bioethics and Public Health in the Johns Hopkins Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health, where she is also a Professor of Health Policy and Management.

The LHS Collaboratory is co-sponsored by the Department of Learning Health Sciences, the Institute for Healthcare Policy and Innovation and the Office of Research at the University of Michigan.

This event is also co-sponsored by ELSI and CBSSM.

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