Ethics for a learning health care system: The “Common Purpose” Framework

FOUND IN: Events, Research Event


Tuesday, February 12, 2019


12:00pm - 1:30pm


Palmer Commons, 4th Flr


There is increased interest among health care institutions to transitioning to become learning health systems.  In this process, however, there are increased practical and moral challenges from using the traditional definitions of “research” vs “practice” to determine which activities within such systems require IRB review and other ethics oversight, and which do not.  As health systems more deliberately integrate care delivery with ongoing data collection, a set of ethics commitments for this integrated approach must be articulated.  This presentation will provide an example of an ethics framework for learning health care and underscore how also being guided by commitments to transparency, engagement, and accountability around the ongoing learning are also essential, ethically.

Presented by Nancy Kass, ScD, Vice Provost for Graduate and Professional Education, Johns Hopkins University